Saturday, November 23, 2013

The Heaven's Declare

Billy Graham said "There is a language in nature that speaks of the existence of God. It is the language of order, beauty, perfection, and intelligence."

Psalm 19:1-4
"The heavens declare the glory of God,
and the sky proclaims the work of His hands.
Day after day they pour out speech;
night after night they communicate knowledge.
There is no speech; there are no words;
their voice is not heard.
Their message has gone out to all the earth."













I see God every day.


Saturday, November 16, 2013

Prayers and Advocacy

Lately, I've been praying that the Lord would really impress on Dr. Rooker (the psychiatrist) and Dr. McCrady (medical director at NR) what to do that will really help Mike be on a sustainable, even keel.  Up until now, every medication change has not made a lasting difference and it seems that somehow, someway, there is something that will make a difference. Obviously I don't know what that is and neither do any of the therapists, psychiatrists, psychologists, physiatrists, PCP's or any other doctor that has seen Mike in the last 19 months. God is the Master Physician who created these amazing bodies of ours so He knows exactly what Mike needs. Please, please, please pray this prayer with me. We need a calmer, more easily managed Mike both for him and all those around him, as well as, in order to find a placement for him.

State Hospitals are area specific, difficult to get into, and frankly the last resort in my mind. Mike is so much worse when he is more restricted. Training Centers are for the ID patients. (Intellectually Disabled prior to age 18).  Assisted Living Facilities need Mike to be able to do more on his own. My Mom and I visited a really nice one just 30 minutes from here called Helton House. They do not have any openings, plus Mike needs more supervision than they are equipped to provide. They do have ID houses, but again....see above.

I did contact one nursing home, Berry Hill, this week in South Boston, VA that has 2 TBI patients already. I did not get into details over the phone, but I sent the admissions office the summaries on Mike. Yesterday I called to see if my packet was received, but had to leave a message for Tracey.  Please, please, please, pray that if this is God's will, they would be willing to take Mike. I hope to speak with Tracey at the beginning of the week and try to visit their facility this week also.

I just returned from a day spent in Richmond at a TBI Caregiver's Forum. It was good, OK, actually some of it was sort of depressing.  There just isn't much help out there for our TBI survivors or us and while there is a lot of information, websites, and resources, everyone's situation is so different that there is no clear path to follow.  I guess I should be encouraged by some of the stories of how other's loved ones have recovered, but honestly right now it feels like that will never be us.  HOWEVER, there is always HOPE with GOD.   Matt. 19:26 "...with God all things are possible."  Luke 1:37 "For nothing will be impossible with God."

I am more energized to write to our Virginia state legislators and would appreciate any of you other VA residents writing as well.  Just go to virginiageneralassembly.gov and in the middle at the top click on "who's my legislator?", on the next screen, type in your address and their names will pop up, plus a bar below where you can click and send a message right there. The major need is to have brain injury included in the waiver system and funding to be available to brain injury survivors. The Executive Director of BIAV, Anne McDonnell, was a great speaker and said the reason we aren't getting the funding is because we aren't making enough noise. Time to visit and write to my legislators.  All help appreciated.

The search will continue and the fight is on.

Monday, November 4, 2013

The Changing Eyes of Mike

Luke 11:34
"Your eye is the lamp of the body. When your eye is good,
 your whole body is also full of light. 
But when it is bad, your body is also full of darkness.

We can really tell by Mike's eyes what type of mode he is in, which reminded me of the above verse. I believe the verse is actually talking about what we look at and take in and making sure that it is pure and good. Being sure not to take in evil or look at things that are bad and will contaminate our bodies, filling them with darkness. However, I am using it as an analogy of how Mike acts and reacts. When his eyes focus and light up, he can remember past things, hold a conversation, play a game, eat calmly, go to the bathroom, be cooperative, recognize that others are with him and there is a glimpse of the old Mike.  When his eyes are fixed and dark, he can do none of those things, all is dark, unknown, and unseeing.

Friday I arrived in the mid afternoon and for the first hour or two, Mike mainly ignored me. There was no light, recognition, or life in his eyes.  Just an unfocused look that didn't even seem to see me. He was working on a Word Search with the help of Jordan and would say "I'm not good at THESE!" then "Put the game aWAY!" We did go for a walk eventually, and at one point Jordan asked him who I was and he said "My wife, Jennifer." So he did know, but didn't want anything to do with me.  

Saturday morning when I arrived, he was watching a movie. I said hi and squeezed his hand and he pushed me away. We watched the movie for a while and he would yell out different phrases or tell people to be quiet. By lunchtime, he was doing better, ate all of his spaghetti and part of mine then wanted to walk. We ended up taking a long walk and he was doing really well, listening to Kira and I talk and occasionally interjecting an appropriate comment. When we came to a fork in the path, Kira and I were deciding which way to go and Mike became very worried that we were lost which started the downward spiral. "We're lost! We're lost!" accompanied by grabbing or jerking our arms. This continued for the rest of the 15 minutes we walked and continued about 10 minutes after we arrived back at NR. Thankfully, James found the Va. Tech football game on Mike's TV and we were able to watch the last quarter of that before Mike entered the dark eyes phase again repeating over and over "Boston College is winnING!". Something I have noticed this time is that he really accentuates the last word or syllable of a word when he is perseverating and he gets louder and louder.

About a month ago, his medication was changed. Klonopin was discontinued and Depakote gradually introduced. Due to aggression, Seroquel was added. The interesting part is that his perseverative times seem more intense, but his "clear" times seem more clear, as well. During the bad times, he may slap his hand on the table or stomp his feet, hit or kick. During the clear times, he remembers people's names, how they are related or things that happened in the past which is an improvement.  However, we never know when he's going to have light eyes or dark eyes and it can change in a second. Unfortunately, the dark outweighs the light considerably. 

I had really hoped to be able to take him to church yesterday. I searched on line and found a contemporary service that met in a middle school. I called NR about 9:15 and Mike was doing well, had just finished breakfast, and they were going to get him showered and dressed.  When I arrived about an hour later, he was very perseverative and none of us could distract him or engage him in any activity or conversation. He was holding the cards to Sequence and slapping the table saying "These are not the SAME!" over and over. After about 20 minutes, I decided to go on to church. I couldn't do anything for him and I needed to be in Worship. 

God is so good. The songs & sermon were wonderful and the young woman who sat beside me is a nurse who works in a brain surgery department of a local hospital. After the service we talked for a good while and it was just such a blessing, because she understood to some degree the challenges we are facing. Also more prayer warriors were added to our army who are storming the gates of heaven on our behalf! If you're in the Blacksburg area, check out Northstar currently meeting in the Blacksburg Middle School on Prices Fork Rd. Jesus is definitely there. 

After grabbing some lunch, I went back to NR and Mike was in a very agitated state wanting to go somewhere. We finally got him in a vehicle and tried to just take him for a ride, but he was hitting the seat, taking off his seatbelt, and yelling "Let me GO!" Back at NR, he eventually settled down enough to play Sequence, then we watched a TV show and he was doing so well at that point that I asked to take him to Waffle House.  We went and he was terrific!  He ate an entire All Star Breakfast, a quarter of my waffle, and 2 cups of hot chocolate. His conversation was appropriate, he was calm and cooperative and ate slowly.


As soon as we walked out of the door, he said he wanted to go to Wal-Mart. We said no, it was too late and Wal-Mart too far away. That set him off and he started throwing a tantrum, basically. We got him into the NR vehicle, Peggy locked him in, and headed straight back to NR. I headed to Silvia's and called to check that they had arrived back safely. They did and this morning said he had slept all night. 

This erratic behavior is making it very difficult to find a placement for Mike and this weekend helped me again see that I cannot handle him on my own. I had a meeting with the staff this morning, and they are going to check into the remaining Training Centers in the state. Lisa and Ivan believe that would be the best fit for Mike of the options that are available.  It is heartbreaking, especially after I see a glimpse of the real Mike, but that is so rare.  

Well, I need to hit the road back to Blackstone. I tried to see Mike after my meeting this morning, but it was not a good morning, so I came on back to Silvia's, ate her delicious leftovers (Thank you Silvia!) and wanted to get an update on here.  Next I'll have to tell you about the 2 beautiful country weddings last month and other happenings.  As always, thank you for keeping up with us and especially for your prayers and love.

Tuesday, October 8, 2013

Be Separate!

Isn't it great that we are always learning and there is always more we can learn? Some of the things I've learned this week, in no particular order, are:

It was so great to have Elke here and to get her perspective and reaction to seeing Mike. She had not seen him since the accident, but kept up-to-date via CaringBridge and then this blog.  The situation was harder and he was worse or maybe less coherent than she expected. Face-to-face is worth a thousand words.

ID - Intellectual Disability - definition according to aaidd.org: "...is a disability characterized by significant limitations in both intellectual functioning and in adaptive behavior, which covers many everyday social and practical skills. This disability originates before the age of 18." (obviously, we don't qualify)

MH - Mental Health illness - generally refers to conditions such as depression, schizophrenia, bipolar disorder, etc. Brain Injury is not included under these serious medical illnesses. Seems that most of these can be managed with medication and therapy or some type of treatment. That is not always the case with BI and I would assume is not always the case with all of these disorders either, but..??

"The Medicaid home and community based waivers are programs offered to eligible individuals who require assistance with activities of daily living and/or supportive services and would prefer to live in their own home or the community rather than in a facility setting."  Right now Mike is in a "community" type setting, but there are no waivers for BI in Virginia to help with that type of living arrangement. Even the waivers for MH & ID that are available have very long waiting lists, as in years and years.  

Medical advancements are keeping people alive, but there are just not enough resources to provide help and/or residential services for all who need it. We can't expect the government to be able to handle this load completely, but we can have a voice and hope for some change and assistance.

There is a whole community of people struggling along the best they can in an attempt to take care of their loved ones.  I went to a meeting today along with about 100 other people who want our voices heard about what the needs are in our difficult situations. Virginia is beginning the process to revamp the waiver system and so these meetings are being held throughout the state.  

The following is a link to a very sobering, but informative article: residential-treatment-traumatic-brain-injury-victims  Mike may have to go to a nursing home type facility, if we can find one to take him, and it may not be a long-term fix. (You'll understand after you read the above article.)

I really needed my counselor, Tanya, today. To be honest, when I first started seeing her a couple of months ago, I wasn't sure that I really needed counseling and she wasn't sure how to help me either. However, we decided that she would be a safe person for me to talk with and share anything and God knew that the time would come when I really needed her advice and Godly counsel. Today was that day and all the sessions before had given her the background she needed to help me. She made a good point, since I am trusting God to use us in this adventure for His glory, maybe there are unsaved people in various facilities that need to see God's love through Mike and I and our witness of Him. My fear of Mike being moved from pillar to post, can be used of God. Trust Him and be His witness.

God's Word is new every morning. I believe I've wrestled with God lately and was in turmoil. I praise God for a Billy Graham devotional that I get on my phone. Last night it was late when I read it, but it was what I needed - Imagine that! The title was "Standing Firm" - sound familiar? It reminded me that men like Daniel and Moses were tempted or tested by worldly ease, but they refused to forsake their godly heritage. "...history has been replete with the lives of men who have put God and His way of life above all else. Prayer - Help me to stand by faith in You when I am tempted, almighty God."

For the first time last night, I had actually thought it would be so much easier to follow the lawyers advice and divorce Mike, but of course, I would have more turmoil if I did that. So it was a fleeting thought that was quickly dismissed after reading Dr. Graham's devotional. Then this morning I re-read 2 Corinthians 6. Yesterday morning I could not focus on it. This morning it was gold. Here are some of my notes:  Stay strong in salvation, don't be a stumbling block. Show that no matter what, Jesus is more important, God's way is the best even through the long list that Paul writes - hardships, beatings, imprisonment, hard work, sleepless nights, purity, understanding, patience, ........sorrowful, yet always rejoicing. Live life wide open. Not holding back. Don't bind yourself to an unbeliever - you will not be able to agree for "we are the temple of the living God. As God has said: 'I will live with them and walk among them and I will be their God, and they will be my people'." Be separate! Be different from the world! Jesus is crying out for us to do so!





Saturday, October 5, 2013

Caboose park photos

On a cheerier note. Here are some of the photos taken by my cousin Keleigh at Caboose Park where we celebrated Mike's birthday, back in August.  If you are in the Blacksburg/Christiansburg, VA area, look her up, she has a great eye and fun props for official photo sessions - facebook/keleigh photography. Thanks Keleigh for fitting us in and working with these wild grains of Rice!



We are family!


Mike enjoyed climbing on the caboose.


Happy Birthday, Mike!
He just can't help himself,
if there's something to climb.


Love this one! Best smiles ever!
So great to have lots of family
support and love.
Maggie, Jenney, Sam, Mark

Brothers - Mike & Mark
G'ma and the newlyweds.






Well....they can't all be serious.

April baby!

Letting Go of Control......Again

OK, grab a cup of coffee or a snack or come back later. This is a long one. I recorded this on my phone the night of the hearing for Guardianship, September 18, but have just gotten around to transcribing it. I may have told most of this before, but I don't think I have ever shared the whole story of that afternoon on April 25, 2012.

*****************************************

Control......such a simple looking word, easy to say, easy to spell, but oh so hard to handle correctly. I should have learned this already, but it comes around every so often...letting go of control. Obviously I'm a slow learner in this department. However, before I go into the new "control" lesson, let me back up.

Before Mike's accident, he really wanted to return to the mission field, but to me something just didn't seem right. Mike was not happy in his job and it seemed the motivation was wrong, even though he assured me that wasn't it. That he really felt called to be a missionary again or that he was never "uncalled". The only reason we returned to the states was because of me. I wanted to come back. I wanted our children to be able to know their extended family. So this time, I tried very hard not to be controlling. To let it go and trust God to lead. The first thing was to sell our house and it sold so quickly, that it seemed God was freeing us to go on the mission field. Even still, we moved into that tiny apartment in Fayetteville and Mike searched through many different mission agencies and nothing seemed to fit.

At that time, I reconnected with a former neighbor/friend who was going through a hard time. We shared our concerns and began praying together. She was fasting for the problem in her life, and so I was encouraged to fast for Mike's and my future.  Something just didn't seem right with Mike, he would have these strange moments where he didn't recognize people he knew well, and moments when he would space out for a few seconds. I expressed my concern, but he said he was fine. While I was trying to be supportive in the search for mission work, things just weren't coming together for a mission spot where we both could be used and it felt like we were trying to make something happen before it was time.

The day of his accident, I was fasting and praying. I had just come home from the store and he was getting ready to go out and run. I asked him what he'd like me to fix him for supper and he asked why I wasn't eating. I told him and he looked bothered by that and said "You're not going to eat all day?" I said "No, I want to fast and pray about our future, but if it bothers you I will eat with you." He said "No, I'll get something when I'm ready." I said "OK. I'm going to put these groceries away and go for a walk," then he left for his usual afternoon run. That was the last conversation that I had with the Mike that I knew.  In a matter of probably 15 minutes our life, as we knew it, came to an end. He walked out the door and did his stretches. (I couldn't see him, but he'd been doing this for all 28 years of our marriage so I knew it by heart) - stretch, run, sit-ups, push-ups. I put away the groceries, put on my walking shoes, and went out to walk.

I got to the back of the apartment complex when I received the call that Mike had been involved in an accident. When the realization hit that Mike was running, not driving, I started to run. For some reason I ran to the office thinking the manager told me the police were there, but the office was locked. Then I looked and saw flashing lights down the road and I knew it was bad. I took off running again. The maintenance man saw me and came and picked me up with the golf cart.  I got to the scene of the accident and I saw the ambulance as I looked for the person in charge. The apartment manager pointed out the police officer and I went to him and said "I'm his wife." Immediately, the very distraught woman that he was talking with turned to me and said hysterically "I am so sorry! There was nothing I could do!" I have no idea what I said to her. The policeman asked basic questions and told me Mike was already in the ambulance and it was ready to go. I could follow as soon as I finished answering his questions. I am so thankful that God spared me from seeing Mike on the road all broken and bleeding. Honestly, in my mind all I see is the golf cart, the people on the side of the road, and an ambulance. I saw, I think, a small white pick-up truck, but I never looked at the front of it. I never noticed glass, blood, or anything on the road. I believe God protected me from having those images in my mind which would be hard to erase.

I got myself together and drove to the hospital. At that moment I never thought about calling anyone to go with me. I still did not know how bad it was and since Mike has had several minor accidents in the past, I was just thinking he'd be fine again. No one had told me anything about his condition yet and I had not seen the truck hood. A woman at the scene had told me he was moving, so she thought he would be alright. I called Pastor Tony on my way to the hospital and tried to reach another friend. The first person I saw at the hospital was one of the police officers. He arrived with a bag that had Mike's torn and bloody shoes in it. Then I was called to a small room where various people and doctors came in and spoke with me and I was basically clueless to what they were really trying to tell me. That my husband was in very critical condition. Nothing was really registering. They told me he was being prepped for surgery on his legs and I could come see him for a brief moment. I got back there and saw his clothes on the floor that had been cut off of him, they had tried to clean up the blood and they had him covered except his face. His face was perfect - not a scratch. He looked pale, but good; however, I didn't see what was under the sheet. I didn't ask to, and I'm sure they didn't want me to. It was all very quick and they whisked him away to surgery. He had lost a lot of blood they said. Did I want his clothes? No. In order to get him to surgery, as soon as possible, and before getting all of his personal information, he had been given the code name "Code Trauma Horseradish". Seemed like a bit of humor a midst all the crisis, and yet I forgot it when I later tried to get a status update. Thankfully, the nurse knew to ask if he had a code name and found him right away.

I had no control there. None whatsoever and yet, all of a sudden I had all of the control in making decisions for Mike. I was his Power of Attorney, his wife, and he was totally incapacitated. He would be drugged to be kept calm and to help with the shock and pain. Everything seemed to go so slow that night, the accident happened around 4:00 pm. He went into surgery as soon as they had him stable. His lower legs were badly broken and they were open wounds which had to be dealt with quickly. Our church family from West Fayetteville was wonderful. They came in droves. It was a Wednesday night so they were at church when they heard and many came. The first to arrive was our dear friend, Ryan. He left the church as soon as he heard. What a comfort to have him there and he stayed the entire time, even following me home after midnight to be sure I got into the apartment safely. The surgery took a long time since Mike's legs were so badly broken and the skin torn apart. They had to get the bleeding stopped, the bones somewhat set, and the skin closed. External fixators where installed - big old metal things with bolts into his legs to hold them still and the bones together. We were waiting to hear that he was in a room and I could go see him, when our friends, David & Judy, popped into the waiting room and told us they had seen him! No one had come to tell me, but they had just arrived, asked about him, and been taken to his room.  He looked rough - tubes all over his pale face and body attached to various machines which were beeping and flashing. There was absolutely nothing I could do to fix him. This was no fender bender.

And now I have all kinds of control that I don't even want. Today (Sept. 18) I was put under a court order to be Mike's legal guardian and conservator. I don't want all of this control and yet it is thrown in my lap. I have been reading in Job, again God's perfect timing.

Job 12:10-25 says:
In his hand is the life of every creature and the breath of all mankind.
Does not the ear test words as the tongue tastes food?
Is not wisdom found among the aged? Does not long life bring understanding?
To God belong wisdom and power; counsel and understanding are his.
What he tears down cannot be rebuilt; the man he imprisons cannot be released.
If he holds back the waters, there is drought; if he lets them loose, they devastate the land.
To him belong strength and victory; both deceived and deceiver are his.
He leads counselors away stripped and makes fools of judges.
He takes off the shackles put on by kings and ties a loincloth around their waist.
He leads priests away stripped and overthrows men long established.
He silences the lips of trusted advisers and takes away the discernment of elders.
He pours contempt on nobles and disarms the mighty.
He reveals the deep things of darkness and brings deep shadows into the light.
He makes nations great, and destroys them; he enlarges nations, and disperses them.
He deprives the leaders of the earth of their reason; 
he sends them wandering through a trackless waste.
They grope in darkness with no light; he makes them stagger like drunkards.

God is in control. What I didn't know that first night was that Mike had brain injury and it would turn our world upside down, topsy-turvy, inside-out and be devastating in so many ways and it still continues. This is almost 17 months post-accident and it's not over yet. When reading Job, it dawned on me, I am not in control at all, I cannot change or heal Mike. What is exactly wrong with him and how long he'll be this way is only known to God. I have guardianship, because Mike is mostly like a small child. Is this all due to the TBI or prior-dementia? Only God knows. He seems to be getting worse or at best, stuck where he is. Most with brain injury have a slow recovery, but he seems to be stuck or going backwards. I'm still trying to come to grips with this hard reality. I cannot fix Mike or even take care of him anymore. It is more than I can handle. 

Then today (18th) my sister-in-law, Jenney, called and told me something the Lord spoke to Mark or an impression that Mark had while in prayer. I've been praying that the Lord would provide a facility for Mike close to me so that I could be more involved with him; however, I think that was all to make me feel better. What was impressed on Mark was the importance of having Mike in the best possible place for him, whether that is close to any family or not. So much of the time he doesn't know what is going on, he doesn't understand, doesn't recognize me. I'm not discounting that God can still get him out of this prison of his mind. I believe that God can, but may not choose to because he has a greater glory and purpose in mind. This is very hard and I still have days like today when I just feel it is too hard, emotionally it is too much and I cry out to God to do something! Bring about some change, please! The guilt of going on with life while he is trapped in his mind and unable to take care of himself at all while tucked away in some facility can overwhelm. Yes, I have legal control, and yet no control. I cannot change Mike in any way, shape, or form. I never have been able to and never will be able to. He is in God's hands! God alone has control! Maybe that is the lesson that I need to learn, so that anything that changes with Mike, all the glory is God's.  All of it. ALL OF IT! I cannot take credit for anything in Mike's life and how it might change from now on or how it has been, or will be. Mike is in God's hands.

Kim shared something in Sunday School from a movie about babies coming into the world with hands clenched - they are grasping, needing and wanting everything for themselves. Then when people die their hands are open, they finally learn to let go.  

Lord, help me to open my hands to you now.  To let go and trust that you will do what is best for Mike, in your time. You will be there for Mike, you are who he always needs. Please find the best place for Mike, Lord, wherever that is, and help me to say goodbye to control. I love you, Lord Jesus. Please give me your peace. Amen.

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Being so totally human, I often lose my focus and have to be reset. Focusing on the problem is like being rolled by an ocean wave, caught in the tide, unable to breathe.  Focusing on my Lord, even in the midst of doing what I have to as Mike's guardian/advocate, brings clarity and determination and peace.  Turn your eyes upon Jesus. The things of earth will get dimmer. Such a great message in song. Thank you for praying and walking along side of us on our adventure with God.

Saturday, September 28, 2013

Who’s the Giant?

Last Monday, our good friend, Elke, from Canada arrived to spend several days with me. It is such a joy to have her here. Mike and I first met Elke and her husband, Gert, in Palau so we have a fairly long history together. Being missionaries on small islands in the Pacific tends to closely connect the foreigners (aliens). We actually had to register as aliens while living there. Doesn’t that sound funny? We’ve enjoyed visits to Canada and they have visited us in the states throughout the years. Elke has jumped right in and helped with whatever is going on. We’ve painted the front of the rusted refrigerator, made home-made ice-cream for the church lawn supper which is tonight, planted flowers, hung clothes on the line, and even started scraping/power washing the barn, etc. With my nephew, T.R.’s, wedding coming up in mid-October, there is lots to do.

On Wednesday, we left at 5:45 a.m. in order to meet Mike and the NR staff at the neuro-surgeon’s office in Roanoke. On Sunday night, Mike fell and hit his head, leaving a laceration just above his right eye on the brow. Sunday night he was taken to the emergency room and received a few stitches and staples. He seemed fine otherwise, so he returned to NR where they checked him every 3-4 hours to be sure he was alright. On Monday, Mike had an appointment to have his right pinkie finger x-rayed due to swelling. The previous Friday, Dr. McCrady had written an order for a CT scan. He felt that the CT scan would show whether Mike had normal-pressure hydrocephalus and he did not want to put Mike through sedation and the possibility that he would have to spend a night in the hospital in order to get an MRI. While at the pinkie appointment, the nurse noticed the order for the CT. Since Mike was being very cooperative, approval was given to go ahead with the scan right then also. The pinkie x-ray revealed no break.

The CT scan ruled out hydrocephalus, but did show a small amount of blood in the subarachnoid space at the spot where Mike had hit his head the previous evening. The radiologist or doctor who read the scan did not think it was significant, but Dr. McCrady wanted to be sure; therefore the appointment with the neuro-surgeon, Dr. Frasier, on Wednesday. Dr. Frasier confirmed that it was insignificant and quite normal for the type of injury Mike had received from his fall on Sunday. I tried to ask the doctor some other questions and see if he would read the scan to me, but he was rather blunt and only wanted to deal with the reason Mike was there. At least I have all of the scans/MRIs on disk now and hope to get an appointment with Tracey’s friend to read them to me.  Everyone who has reviewed the scans has mentioned the atrophy (shrinkage) in Mike’s frontal lobe. This means, at least in part, that there is a loss of neurons and the connections between them. (You’ll have to Google it for more details.)

Mike was very calm Wednesday morning at the doctor’s office. After the appointment, we all returned to NR, minus the calmness. Mike was quite agitated the rest of the morning. We figured he was probably tired since he had to be up and out so early. I tried to help him eat something, and he ate a little, but couldn’t be still and was in the grabbing mode. Dr. Rooker, the psychiatrist, came by and I was able to talk with him briefly. He said Mike’s case is a bit unusual in that nothing in particular seems to make a lasting difference. After thinking it over, the next day Srdj, RN, told me that Dr. Rooker decided to taper off the Klonopin and start Depakote. Depakote was tried about a year ago, but Mike was on so many medications at the time that we could not tell if it helped or made things worse or was interacting with something else. It is mainly used for seizures, but also for manic episodes or bi-polar disorders. It takes a few weeks to get into the system.

Elke and I left soon after, in hopes that Mike would settle down and rest.  We had planned to return later, but he stayed much the same the rest of the day so we did not return. We walked around downtown Blacksburg, ate lunch, went shopping for some things for Mike, and then went to Silvia’s and worked on making a photo album for Mike. The Speech Therapist wanted photos with names on the back to use in working with his memory.

Wednesday evening, Elke, Silvia, and I enjoyed eating out and just talking together. Thursday morning, Silvia put out a wonderful breakfast which we leisurely enjoyed together. I called NR and was told Mike was having a fantastic morning. The staff said he woke up happy, smiling, and laughing. Somehow he got stuck on saying “I’m the giant.” Tina would jump in front of him and say “Who’s the giant?” and Mike would smile, chuckle, and say “I’m the giant.” He thought it was funny also, when I would stomp toward him saying “Fe, Fi, Fo, Fum.” We spent several hours with him and he was like that the whole time. We really were interacting with him as if he was a child, but that is what made him laugh, and it was a joy to see. We walked, went to the park and tossed the football around a lot. I was trying to help Elke with her throwing technique and at one point said “Am I teaching her all wrong, Mike?” and he smiled and said “Yes.”  When I asked him to teach her, all that would come out was “I like football” which is what he had been repeating previously. Is hard to know if he was thinking something else and that’s all that would come out, but he did not seemed distressed in any way. I was going to try to give Elke a break from tossing with him, but at that point he only wanted to throw to her.  He still throws a beautiful spiral and usually catches the ball if not thrown too hard. Later, at the park, I acted like a center, and told Mike to do the count. He did, ending in "hike". One time, instead of throwing the ball to anyone, he came slowly over to me, got real close, and said “You go out.” How fun – a huddle! Elke noted that the more we played, the more stable he seemed on his feet.  Now he was turning from me to her to throw or catch. Mike enjoyed swinging, went down one slide, and then was ready to go back and rest. What a delightful time with him. 



I just started 2 Corinthians this week and want to leave you with the following verses:

2 Cor. 1:10 & 11
He has delivered us from such a deadly peril, and he will deliver us.  On him we have set our hope that he will continue to deliver us, as you help us by your prayers. Then many will give thanks on our behalf for the gracious favor granted us in answer to the prayers of many.”


You are all such an important part of this continuing adventure in our lives. Without the prayers of many, I know this would be so much harder. Thank you for your perseverance in prayers and love to us. It means so very much.

Saturday, September 21, 2013

MRI and Our Father's Love

The second time they tried to have an MRI done, Mike was given Xanax. After one dose, he was not calm enough to be still so they gave him another dose and waited before trying the MRI.  He remained still for 4 minutes, but that was it.  That facility is not able to sedate him so a new order must be written by the doctor for a different hospital about 1 hour away from NR.  Mike was to see Dr. McCrady yesterday, so I hope he wrote the order. Dr. McCrady doesn't think Mike shows enough symptoms to have normal-pressure hydrocephalus. The psychiatrist, Dr. Rooker, would like to be sure and so would I; therefore, I am being persistent in requesting that it be done.

On my return trip from Ohio, I stopped in Blacksburg to spend time with Mike on Sept. 12 & 13.  He was having fairly good days. We tossed the football together and took a walk.  When he headed to supper, I just slipped out the side door and went to Silvia's.  It was such a pleasant night. My cousin, Todd, came over and grilled hamburgers and we sat on the deck. I really enjoyed just sitting and talking with Todd and Silvia. It felt so normal and the conversation was light and easy. Friday morning Mike was agitated and wouldn't eat his breakfast. I had brought him home-made zucchini bread and was able to encourage him to sit and wait while it was cut and brought to him. He is so impatient about everything. His food has to be cut in small pieces and given to him little by little or else he gorges and chokes.  After that, he went for a ride with the LST while I grabbed his razor and football, went to Wendy's for burgers, and met them at the park. He had calmed down by that time. (often a ride does that) We walked to a shelter and I asked him to eat slowly, giving him the entire hamburger. I was so proud of him as he did eat slowly. He also conversed with me a little. Asking for more french fries, or what was in the bag, etc.  I asked if he would like to shave after lunch and received a "yes".  He shaved himself a little and then allowed me to finish shaving and even trim his mustache & hair.  Mike was always meticulous about his personal appearance and it is hard to see him so scruffy. He just won't do it on his own and won't let anyone else help him either. The NR staff tries, but it is very difficult to shave a moving target. This was the first time he let me do it since he's been at NR. I asked him to try to shave every morning after his shower and he said he would, but we've had that conversation before.

Shaving at the park.


After enjoying the park for a while, he wanted to go shopping. He needed a few things from the grocery store and did well while we were there except repeating over and over that he didn't need toothpaste. He and the LST headed back to NR and I headed back to the farm. Departures are just easier if I don't say anything about leaving.

Back at the farm, I'm trying to get into a routine.  After time with the Lord and breakfast, I am spending 2-3 hours in my room making phone calls, searching the internet, e-mailing, paying bills, filling out papers, etc.  I'd much rather be out working in the yard, but I have to research and make plans for the long-term. I've never enjoyed research and am tired of dealing with all of this, but it's not going away. I figured if I spend a few hours a day it won't overwhelm me and I'll chip away at the process. Had a real breakthrough yesterday when I found my old budget sheets from 2009-2011. I needed some information from these in applying for Medicaid. That was a huge weight off of my mind. I celebrated by spending the afternoon pulling up old flowers and weeds and planting pansies and mums!  Daddy always has some project going that I can usually help with in some way, I help Coley feed the calves occasionally, and help Mom with housework and meals some also. Some way or other, the rest of the day gets filled up with no problem.

We had the Guardian hearing on Wednesday, but I'll save that for another post.  I've had some things on my mind and so that night I made a recording on my phone. It's 22 minutes long so I'll try to condense it when I write it here.

I want to leave you with the lyrics to "How Deep the Father's Love for Us" written by Stuart Townend - Wonderful words and a beautiful melody that has been running through my head for several days.


Lyrics:
How deep the Father's love for us,
How vast beyond all measure
That He should give His only Son
To make a wretch His treasure

How great the pain of searing loss,
The Father turns His face away
As wounds which mar the chosen One,
Bring many sons to glory

Behold the Man upon a cross,
My sin upon His shoulders
Ashamed I hear my mocking voice,
Call out among the scoffers

It was my sin that left Him there
Until it was accomplished
His dying breath has brought me life
I know that it is finished

I will not boast in anything
No gifts, no power, no wisdom
But I will boast in Jesus Christ
His death and resurrection

Why should I gain from His reward?
I cannot give an answer
But this I know with all my heart
His wounds have paid my ransom
(REPEAT)

http://www.youtube.com/watch?v=YV2zMZ-nZ7k   Listen to the song.
http://www.youtube.com/watch?v=BdVQNyQmdM4  The story behind the writing of this song.

Monday, September 9, 2013

Mike's Birthday

Mike's birthday was August 26. On August 31, Mike's Mom, his brother's family (Mark, Jenney, Maggie, Sam), Keegan, Amy and I all met in Blacksburg at the municipal park (aka Caboose Park) to celebrate Mike. Two of the staff members at Neuro-Restorative brought Mike out to the park once we were all set up. At first Mike just walked around in the shelter not saying anything. I fixed him a plate of food and eventually he sat down, but the answer to every question was "no". He would push his plate away, but if we put food on his fork he would open his mouth and eat it. After eating, the group went over to the caboose and swings.  He enjoyed getting up on the caboose, turning the brake wheel, and saying "woo, woo". While cute, it is also heartbreaking because at 57 years old he is so child-like. Later he got on a large plastic chair swing and they said he had a huge smile on his face.  I had gone back to the pavilion so missed that. Even though he never called anyone by name, it was obvious that he enjoyed the day. Whether it was because we seemed familiar or just because it was outside with lots of people, we'll never know.

When asked if he was ready to open gifts, he said "no". We waited a while and then tried again - "no". So I opened them and gave them to him. Hugh and Tracey sent him a pair of shorts that are OSU colors and he wanted to immediately put them on, so we just pulled them up over his other shorts. Mom R. gave him an OSU t-shirt and socks and I threw in a VT football - I mean he is in Blacksburg after all! Mark & Jenney gave him a bag of paper, pens, markers, etc. and he received fun cards. Later, my cousin, Keleigh, who is a photographer on the side, came to take some pictures for us. About that time, it started to thunder and the clouds were rolling in. We were able to get some photos, but Mike was becoming increasingly concerned about the approaching storm and wanted to leave. So the staff and Mike headed back to NR, we took a few more pictures, and then packed up our picnic. Mark and family headed back to Ohio and the rest of us headed to our hotel. These are my amateur pics, will post the professional ones when I get them.

Mike really enjoyed the caboose at the park.
Woo! Woo!

Mom R. and Amy enjoying the day.

Mike with his new OSU-colors shorts on
and tossing his new VT football with Keegan.

A beautiful, hot day to celebrate Mike's birthday.




Mom R., Keegan, Amy and I had a light supper in downtown Blacksburg at The Cellar Restaurant. Was such a nice evening after the thunder storm and we enjoyed sitting outside watching all the Hokie fans go by. Amy is having to be a bit careful about what she eats now, since it doesn't all agree with the baby. That's right!  Mike and I are going to be grandparents in April 2014! So exciting! She is doing well, just keeps crackers or dry cereal handy. Please keep them in your prayers. Here is a link to Keegan's blog telling about all the changes in their lives.
When I told Mike he was going to be a grandfather, it didn't seem to register. Then a few minutes later he said "I'm a proud parent." :-)

Keegan and Amy left early Sunday morning headed to Raleigh to their previous church and a wedding that afternoon. Mom and I had breakfast and then went to see Mike. It was not one of his good days. We had some chaos at the very start where Mike grabbed a staff member and would not let go. This caused two other residents to get upset, and Mike fell. He was OK. I'm sure the staff member probably still has a bruise. We finally got outside to take a walk with him repeating a strange phrase. I started to sing hymns and encouraged him to sing with me. Thankfully he did join in and we sang several hymns as we walked.  Such a precious time. It was lunchtime when we returned and Mom R and I wanted to get on the road headed to Ohio. Mike became very clinging with me. He pushed his Mom away and grabbed me. I stayed with him so he would eat. It's hard to know if he really knew who I was or if he was just clinging to me because I had been with him. One day when I was there he kept grabbing a staff member named Mike, and saying "I choose you." He has a very strong grip and we have to pry his fingers off. He had grabbed and squeezed my right hand so hard, that it ached for the rest of the day. I had to sneak away a while later and have no idea what the staff had to deal with once I was gone.  The other Mike was there with him so he probably settled on down. Mike is very good with him.

I am still in Ohio.  It has been a real blessing to meet some of the folks here who have been supporting Mom R. and us through prayers and encouragement. Always nice to put a face with a name. Is hard to believe it has been almost 2 years since I've been in Ohio. Mom R. has moved and now I can picture her in her new place also. We've taken care of some errands for her, enjoyed eating out, movies (at home), meals with Mark's family, watching Sam play football & Maggie play field hockey, and I'm getting some of my paperwork done, as well. As a family, we met concerning the next steps for Mike and it helps me so much to have their wisdom, support, ideas and encouragement. 

Here are some specific prayer points:
1.  It is currently 11:00 a.m. and the Guardian Ad Litem should be arriving in Blacksburg to speak with Mike and the staff there at any minute. The Guardianship hearing has been set for September 18 in Richmond Circuit Court. God's will be done.
2. Mike is scheduled for an MRI this Wednesday at 9:30 a.m. Was supposed to be last week, but he was too agitated. They will give him a Xanax prior this time and hope that will be enough to calm him and help him be still. I'm trying not to doubt and be tossed like a wave on the sea. Pray he will be able to lie still and this MRI can be completed.  This is for prognosis, comparison, and the possibility that he has normal pressure hydrocephalus. We are praying that he does, because this is treatable and may help with his gait and incontinence. Please join us in this prayer.
3. I have appealed BCBS's decision to stop coverage when Mike was in Tucker Psych. Pavilion. They did not cover the last two weeks he was there.  Please pray we receive a favorable reply from the appeal.
4. I am starting the search for a long-term facility and need to start the process to get Mike on Medicaid. Please pray for God's leading in all of this and that it will go smoothly without too much frustration and phone tag. Pray the facility is close to home so I can be involved with him and his care more easily and regularly. Pray for God's timing regarding the eventual transition for Mike.
5. Continue to pray for a Miracle of healing in Mike! I pray for Mike's healing all the time and, to be honest, I ask God if that means here on this earth or perfect healing at home with the Lord, I leave that in His hands. It is so hard to think of Mike like this for years to come, but I pray for strength to accept that also, if it is God's will. Then there could be an in-between that many with brain injury live with every day. Only God knows and I will trust Him and believe that He will give us strength for whatever the future holds.

Thursday, August 29, 2013

Information

I have really been procrastinating writing this blog, but here goes….  A couple of weeks ago, my sister-in-law, Tracey, came over to discuss Mike’s CT scans. She had taken the disk I had from WakeMed and had one of her associates (actually his brother, I think) review the scans. One was taken in early June just after Mike arrived at WakeMed and the other was taken in October after Mike had fallen and hit his head. There was no change in the scans. The good news of that is he did not receive more damage in the fall, the bad news is there was no improvement from the initial TBI. Tracey asked if Diffuse Axonal Injury (DAI) had been explained to me.  No, I’d never heard those words. I heard swelling and bleeding on the brain and shearing.

Here is a link to a short video explaining DAI http://www.youtube.com/watch?v=2RgzIjeKbXo and here is a portion of Wikipedia’s definition:
    Diffuse axonal injury (DAI) is one of the most common and devastating types of traumatic brain injury, meaning that damage occurs over a more widespread area than in focal brain injury.
    Unlike brain trauma that occurs due to direct impact and deformation of the brain, DAI is the result of traumatic shearing forces that occur when the head is rapidly accelerated or decelerated, as may occur in auto accidents, falls, and assaults.
    The major cause of damage in DAI is the disruption of axons, the neural processes that allow one neuron to communicate with another. Tracts of axons, which appear white due to myelination, are referred to as white matter. Acceleration causes shearing injury, which refers to damage inflicted as tissue slides over other tissue. When the brain is accelerated, parts of differing densities and distances from the axis of rotation slide over one another, stretching axons that traverse junctions between areas of different density, especially at junctions between white and grey matter. Two thirds of DAI lesions occur in areas where grey and white matter meet.
    The lobes of the brain most likely to be injured are the frontal and temporal lobes.

Mike’s frontal lobe has severe DAI. (Here is a good link that describes the functions of the Frontal Lobe. http://voices.yahoo.com/frontal-lobes-brain-functions-they-361802.html.) From a medical standpoint, the Axons and Neurons have been severely sheared to the point that they cannot regenerate or reconnect and no amount of therapy or rehabilitation is going to help him recover. I’d never seen the images or had them explained to me and I guess that was a good thing, because I would not have been ready to hear it or understand it.  I still don’t really understand, but have lived through enough in the past 16 months that it does help make some sense of all the chaos.  I do wonder how he can have those seemingly lucid times, if the damage is so great, but as Tracey reminded me, even when he seems clear, he is still not rational and does not think there is anything wrong with him. Also, those times are few and far between.  He’s had some very rough days this week at NR.  Even grabbed a staff member by the throat and threatened to kill them. This is NOT the Mike I married, but I am coming to grips with the fact that it is who Mike is now and unless God intervenes, this is our reality. 

I am reading Beth Moore’s book Believing God.  Here are a few quotes that I wrote in my journal on Aug. 12, the day before Tracey and I talked.  God’s perfect timing.  “All that will matter forever and ever in our heavenly state is the glory that came to God through our lives. Life is just a breath.” Mike was always such an out-spoken advocate for God. I believe and pray that people will remember him in that way, not as he is now. 

Beth talks about how God is able to do anything, He can perform a miracle in Mike’s brain, healing him perfectly, that is not too hard or impossible for God. However, God may not choose to do so, because He has a greater purpose in mind.  “If I don’t get my miracle, but God gets greater glory, I choose to believe I received the greater miracle with the most eternal dividends. Undoubtedly and ultimately we will be most blessed when God is most glorified.”  If somehow our story causes someone to come to know Jesus as their Savior, or strengthens another Christian, or helps someone else whose life has been flipped this way and that to focus on God, then Praise be to God!  Do I still pray for Mike to be healed?  Absolutely!  Will I still advocate for the best care and stick by him? By all means! I will continue to hope and expect improvement, but I will also research long-term facilities, because the reality now is that I cannot bring him home any time soon and maybe never.

The last think I wrote in my journal that day was: “2 Corinthians 4:16-17 I pray this is true for Mike – that he is inwardly being renewed day by day.”

2 Corinthians 4:16-17
“Therefore we do not lose heart.
Though outwardly we are wasting away,
 yet inwardly we are being renewed day by day.
 For our light and momentary troubles
 are achieving for us an eternal glory
 that far outweighs them all.”

Wednesday, August 21, 2013

God's Math


Spiritual Journal Entry
Aug. 8, 2013

God's Addition
according to 2 Peter 1:5-7

    Faith
+ Goodness
+ Knowledge
+ Self-control
+ Perseverance
+ Godliness
+ Brotherly kindness
+ Love                    
= Effective and productive in my knowledge of my Lord Jesus Christ.
   Having eyes that see and remembering that I have been cleansed from my past sins.

Definition of Knowledge - "information and skills acquired through experience or education"  How do we experience and educate ourselves about God? By knowing and obeying what He has given to us through His word and Jesus' example. Knowledge comes from God and the ability to follow His commands also comes from God. We just have to do the math and make every effort to add these in increasing measure.

Not sure he ever knew who I was.
"I'm a strong man."
Was his phrase of the moment.
Enjoying horseshoes
Aug. 14
I stopped at NR to have a meeting with Lisa and visit briefly with Mike before going to my sister,
Vivian's, for a few days. Mike was perseverative, but we went for a walk with the PT and LST. Afterwards, he rode the stationary bike and played horseshoes. He stopped repeating and could answer questions appropriately. His balance is not great right now and they are trying to use a gait belt, but he doesn't like it. We tried it once before and it caused more problems because it frustrated him. I wouldn't like someone holding on to me all the time either, but then he falls more easily. He's also back to drinking thickened liquids and a mechanical soft diet. So, of course, I'm wondering if it's the Clonazepam that was a new med started at Tucker. Just from on-line reading, it says it can be a sedative or muscle relaxant. Thankfully, since being at NR, they have stopped 3 medications! I've voiced my thoughts on the Conazepam to Lisa and she's going to check with the medical director.

Aug. 14-19
7:15 am
Sunrise & clouds on the mountains
I enjoyed spending time with Vivian and her husband, Mike G. The view from their house is gorgeous, as you can see.  Vivian and I worked a few hours organizing and cleaning in her 2nd grade classroom on Thursday and Friday, plus enjoyed a nice walk along a river in Marion.  Saturday, Mike G., Viv, and I went into Asheville for lunch and a movie. It was a fun visit with them. We read, ate very well (Mike and Vivian are great cooks!), watched movies, talked and I played/exercised with Wii Fit. Thanks for a great visit M&V!



While at their house, I received a couple of e-mails from Lisa the case manager at NR. Here are portions of those:

Aug. 16
I wanted to tell you that Mike has a had a couple of small falls the past two days. During one fall (9/14) he was playing horseshoes with staff outside and bent over to pick up the horseshoe and lost his balance. The second fall was yesterday and he tripped getting up from the table. Of course, he doesn’t usually want the gait belt on or contact guard assistance, but we are trying.

I also wanted to tell you what a great day he had yesterday. It sounds like the morning was a little rough (a little aggressive toward staff early in the morning) but the afternoon was great. Katie (LST) wrote this note in his daily notes: “Since 2pm, MR has been the best I have ever seen. Fully attentive; making sense, little repetition, asking to do things, gave 100% in Speech Therapy, smiling and laughing, trying to remember people’s names (staff). He wrote friends and family letters for a little over 2 hours this evening (his idea) and asked questions and was very polite all day. He was the happiest I have ever seen him and I feel blessed I got to spend today with him. He even told me, “I prayed for you earlier, Katie.”

Aug. 19
Mike had another great day yesterday. He helped drill and put together some stuff with the weekend Rec Therapist, Will. He also wrote some more family letters.

Isn't that great?! Yesterday I left Viv's and came back through Blacksburg to see Mike. Unfortunately, it was not a good day. Lots of repeating, the blank look, no recognition of me. I spent several hours with him, we played Sequence and went for a walk, but he really couldn't focus. Am heading back there now for a few hours and then on back to the farm. Am praying he's having a better day today.

Thursday, August 15, 2013

Rest, Reflect, Renew




The Well Retreat Center, what a blessed place to retreat to in order to rest, renew, relax, read, reflect, respond, and meet with my Savior and Lord, Jesus Christ. I went to The Well feeling fragmented and disjointed, unable to calm the frantic pace that has been my life over the last 15 months since Mike’s accident. Tom and Linda Ashe, the Directors, gave me “permission” just to “be”, to sleep, and to follow the Holy Spirit’s leading as to what I read and did while there. What a gift! I found peace, quiet, and a retreat from all the responsibilities and pressures, plus found anew the hunger for more time in God’s Word. I’ve learned again the absolute need to grow in the knowledge of God through His word in order to stay pure of heart, and how journaling helps to solidify it in my mind and keep Him as my focus and center. I also relearned the importance of carving out time to rest and reflect. These I will strive to carve out time for daily, pushing aside the drive to constantly be busy with work or other activities. It has to be a conscious decision to choose what is of greatest priority and make it happen. God will meet me there. He is my all, my strength, my shelter, my strong tower, and refuge from the storm. May He also be yours. There have been many things that God has spoken to me through His Word and other books that I’ve read during my retreat, and I will try to share and post these on a more regular basis in the coming days.

The Friday & Saturday before going to The Well, I had a wonderful time visiting with our great friends, the Guthrie's. Is always a pleasure and joy to spend time with their amazing family and to see how the children continue to grow, mature, and blossom into beautiful children of God.  I enjoyed some laughs with W & LL over peanut-butter-balls-gone-wrong and ended up with "AD" (addictive disaster) as AJ dubbed it which was delicious. I played carpet ball with the 3 youngest, enjoyed a couple of hours of just talking with Kristin, LL painted my toenails and fingernails, and I appreciated being prayed over by Zack. Then I was off to Keegan's best friend's wedding which was another joyful event.  

Saturday night through Tuesday morning, I enjoyed spending time with Keegan and Amy in their apartment. We played games, ate well (Amy is a great cook), swam in the pool, and had some great conversations. My mom would always say she liked to be able to “picture” us in our homes and it really is a blessing.

Saturday night as I was lying in my bed back at the farm, I was praising God and being grateful for the gift of time with friends, family, Him and respite when a real sense of freedom, peace, and release came over me quite unexpected, yet very welcome. As though through praising, I finally let go of the last bits of burden and care that I’ve been carrying around and put my total focus, trust, and confidence in the Lord.

The Spirit keeps on bringing me to verses and reminders to “Stand still” or some variation of the same message. Isaiah 7:9b “…if you do not stand firm in your faith, you will not stand at all.” I Peter 5:8&9 “Be self-controlled and alert. Your enemy the devil prowls around like a roaring lion looking for someone to devour. Resist him, standing firm in the faith, because you know that your brothers throughout the world are undergoing the same kind of sufferings.”   Did you notice that all the verses say “stand”?  It is not a passive act, we are to be standing, ready at a seconds notice to be obedient to our Master’s command, ready to run from the devil’s attempts to devour us.  I have heard recently of so many Christians who have fallen into Satan’s snares. Evidently they were not standing still, or on the alert, worldly allures can be very enticing. ANY of us can fall prey to the enemy. I would like to ask you all to be praying for me, that I would not fall into any traps that Satan is laying out to try to hurt my witness of Jesus Christ. I want to stay alert, firm in the faith, and only move when God says to move. It doesn’t even have to be a “big” stumble, there are a myriad of “small” ways to stumble.  Let’s increase our knowledge of God’s word and our focus on Him so that we can stand still, firm, and steadfast. Only listening, obeying, and moving at the sound of His voice. There is Spiritual warfare. Let’s keep our shields up, our swords in hand, and our armor on so that we bring Glory to God.