On Wednesday, we left at 5:45 a.m. in order to meet Mike and
the NR staff at the neuro-surgeon’s office in Roanoke. On Sunday night, Mike
fell and hit his head, leaving a laceration just above his right eye on the
brow. Sunday night he was taken to the emergency room and received a few
stitches and staples. He seemed fine otherwise, so he returned to NR where they
checked him every 3-4 hours to be sure he was alright. On Monday, Mike had an
appointment to have his right pinkie finger x-rayed due to swelling. The
previous Friday, Dr. McCrady had written an order for a CT scan. He felt that
the CT scan would show whether Mike had normal-pressure hydrocephalus and he
did not want to put Mike through sedation and the possibility that he would
have to spend a night in the hospital in order to get an MRI. While at the
pinkie appointment, the nurse noticed the order for the CT. Since Mike was
being very cooperative, approval was given to go ahead with the scan right then
also. The pinkie x-ray revealed no break.
The CT scan ruled out hydrocephalus, but did show a small
amount of blood in the subarachnoid space at the spot where Mike had hit his
head the previous evening. The radiologist or doctor who read the scan did not
think it was significant, but Dr. McCrady wanted to be sure; therefore the
appointment with the neuro-surgeon, Dr. Frasier, on Wednesday. Dr. Frasier
confirmed that it was insignificant and quite normal for the type of injury
Mike had received from his fall on Sunday. I tried to ask the doctor some other
questions and see if he would read the scan to me, but he was rather blunt and
only wanted to deal with the reason Mike was there. At least I have all of the
scans/MRIs on disk now and hope to get an appointment with Tracey’s friend to
read them to me. Everyone who has
reviewed the scans has mentioned the atrophy (shrinkage) in Mike’s frontal
lobe. This means, at least in part, that there is a loss of neurons and the
connections between them. (You’ll have to Google it for more details.)
Mike was very calm Wednesday morning at the doctor’s office.
After the appointment, we all returned to NR, minus the calmness. Mike was
quite agitated the rest of the morning. We figured he was probably tired since
he had to be up and out so early. I tried to help him eat something, and he ate
a little, but couldn’t be still and was in the grabbing mode. Dr. Rooker, the psychiatrist, came by and I
was able to talk with him briefly. He said Mike’s case is a bit unusual in that
nothing in particular seems to make a lasting difference. After thinking it
over, the next day Srdj, RN, told me that Dr. Rooker decided to taper off the
Klonopin and start Depakote. Depakote was tried about a year ago, but Mike was
on so many medications at the time that we could not tell if it helped or made
things worse or was interacting with something else. It is mainly used for
seizures, but also for manic episodes or bi-polar disorders. It takes a few
weeks to get into the system.
Elke and I left soon after, in hopes that Mike would settle
down and rest. We had planned to return
later, but he stayed much the same the rest of the day so we did not return. We
walked around downtown Blacksburg, ate lunch, went shopping for some things for
Mike, and then went to Silvia’s and worked on making a photo album for Mike.
The Speech Therapist wanted photos with names on the back to use in working
with his memory.
Wednesday evening, Elke, Silvia, and I enjoyed eating out
and just talking together. Thursday morning, Silvia put out a wonderful breakfast which we leisurely enjoyed together. I called NR and was told Mike was having a fantastic morning. The staff said he woke
up happy, smiling, and laughing. Somehow he got stuck on saying “I’m the giant.”
Tina would jump in front of him and say “Who’s the giant?” and Mike would
smile, chuckle, and say “I’m the giant.” He thought it was funny also, when I
would stomp toward him saying “Fe, Fi, Fo, Fum.” We spent several hours with
him and he was like that the whole time. We really were interacting with him as
if he was a child, but that is what made him laugh, and it was a joy to see. We
walked, went to the park and tossed the football around a lot. I was trying to
help Elke with her throwing technique and at one point said “Am I teaching her
all wrong, Mike?” and he smiled and said “Yes.”
When I asked him to teach her, all that would come out was “I like
football” which is what he had been repeating previously. Is hard to know if he
was thinking something else and that’s all that would come out, but he did not
seemed distressed in any way. I was going to try to give Elke a break from
tossing with him, but at that point he only wanted to throw to her. He still throws a beautiful spiral and
usually catches the ball if not thrown too hard. Later, at the park, I acted
like a center, and told Mike to do the count. He did, ending in "hike". One time, instead of
throwing the ball to anyone, he came slowly over to me, got real close, and said
“You go out.” How fun – a huddle! Elke noted that the more we played, the more
stable he seemed on his feet. Now he was
turning from me to her to throw or catch. Mike enjoyed swinging, went down one slide, and then
was ready to go back and rest. What a delightful time with him.
I just started 2 Corinthians this week and want to leave you
with the following verses:
2 Cor. 1:10 & 11
He has delivered us from such a deadly peril, and he will deliver us. On him
we have set our hope that he will continue to deliver us, as you help us by your prayers. Then many will give thanks on our
behalf for the gracious favor granted us
in answer to the prayers of many.”
You are all such an important part of this continuing
adventure in our lives. Without the prayers of many, I know this would be so
much harder. Thank you for your perseverance in prayers and love to us. It
means so very much.
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