Monday, February 23, 2015

Yet

Yet
Such a small word that I've never really thought much about before;
however it is filled with hope & expectation, perseverance & strength.

Definition from Google search: yet

adverb
  1. 1.
    up until the present or a specified or implied time; by now or then.

    synonyms:so far, thus far, as yet, up till/to now, until now

  2. 2.
    still; even (used to emphasize increase or repetition).

    synonyms:evenstillfurther, in addition, additionallybesides, into the bargain, to boot, on top (of that)

  3. conjunction
  1. 1.
    but at the same time; but nevertheless.


Here are some of the ways this word has crept into conversation and thought lately:

I cannot handle bringing Mike home, yet.
I wrestled with this a couple of weeks ago and God has given me peace that bringing him "home" is not an option, yet. The very next day I received a call from Heather, the SW at CSH telling me about a possible placement or if I thought I could bring him home. This time I was able to answer without wavering. Over the past 2 weeks, Mike has been evaluated for a facility called The Madison House in Richmond, VA, they have agreed to take him, if the DAP funding is granted to Mike for this placement. Emily at the CSB has applied for the funds and is waiting to hear when the board will meet so that she can present Mike's case in person.

Not the best, yet hopefully better
While the Madison House is not a brain injury specific placement, they do have a few residents with brain injury and have a locked unit for Mike's protection, there are less residents than CSH, and it sounds like a homier environment with an open-door policy to family and other groups. Various church groups come in to hold worship/Bible studies, play games and interact with the residents, music groups come in weekly, etc. I've been told it is not much to look at on the outside, and I'm not sure about the surrounding area, but, so far, it seems the Lord is working things out in this direction, and so I will trust this is His will, unless the funding doesn't come through.

God has not chosen to heal Mike, yet,
nor to find a certain medicine or treatment that stabilizes him. The new medication seemed to work for a couple of weeks and then the same behaviors manifested, plus he became sluggish and less coordinated. Therefore, Dr. Ebeling is slowly weaning Mike off of that medicine. I, again, have asked about trying to decrease other meds to see if that makes any difference. Dr. Ebeling is open to that idea after Mike is off of the new med. 

God is not done with Mike, yet.
Thursday, February 12, there was an incident at CSH and Mike was pushed, hitting the back of his head against a wall. Karen and I saw him on Thursday evening and he seemed fine, except for a headache and a large raspberry place on the back of his head that was slightly swollen.

At 2:00AM, Friday morning, Feb. 13, I received a call from CSH saying Mike was being taken to the ER due to projectile vomiting. I called Hugh and we got down there a little after 3am. Mike was sleeping soundly. The CSH tech, Terri, said they had taken him for a CT scan and given him nausea medicine.  About 5:30, we finally saw a doctor and she said the scan was fine, just soft tissue damage and most likely the vomiting was due to a concussion. He was given juice and crackers to see if he could keep that down, prescriptions for nausea and sent back to CSH. I saw him Saturday afternoon and we had a very good Valentine visit. Played a game, talked, read the Bible, prayed and sang. One good thing about sitting in the hospital was talking with Terri. She's on the night shift from 11p-7:30a. She said Mike can be such a sweet person, does get up some during the night and sometimes is confused. She said it takes 2 women to handle him when he is having one of his bad moments. I understand.


I must confess that on the way down to the hospital in the wee hours of Friday morning, I prayed that God would just take him on to heaven and release him and me of the stress, pain, sadness, and hurt. But when they woke him up to give him something to eat in the ER, he looked straight at me for a few seconds and then said flatly "What are you doing here?" I laughed and thought, "He is one tough cookie. Obviously God is not done with him yet, so quit praying for him to take him. All will be done in God's time. My part is to love him, advocate for him and do what I can for him as long as he is here and leave the rest to God."

God is not done working on me, yet.
Saw Mike yesterday.  He looked good, but had steri-strips on his right eyebrow, so obviously some new incident. He said someone in a wheelchair did it. When I asked if he was trying to push this person and they didn't want him to, he said "yes". Sigh.....  Somehow, all of this stuff happening has helped me with the thought of Mike moving to The Madison House. Seems it's time.....God putting all the pieces together.

God is also continually working in my heart towards my husband. I had come to a place of such weariness and irritation that it was hard to look past all of that daily stress and work to really see Mike. God has been softening my heart and helping me to see Mike again, not just a brain injured patient with lots of issues and needs. Also that I can care for him and love him well (actually better, at this time) while he lives somewhere else.

He came to that which was His own, 
but His own did not receive Him.
YET to all who did receive Him, 
to those who believed in His name,
 He gave the right to become children of God.
John 1:11 & 12
My prayer is that through our story, the ups and downs, the struggles and triumphs, what each one that reads this hears the loudest is that Jesus is our reason for hope, for life, for purpose no matter what our situation in this fallen and temporary world. As Job said: "Though he slay me, yet will I hope in him..." (Job 13:15) Mike's and my greatest desire is that when people interact with us, they see Jesus. If you meet us and forget us, you've lost nothing. If you meet Jesus and forget Him, you've lost everything. He has come, have you received Him?  The "yet" is still there, there is still time.



Sunday, February 1, 2015

How is Mike?

I hear this question often and often I don't know what to say other than "much the same". I know people are concerned, interested, and want to know how to pray, but (I'm going to be honest) sometimes I dread the question. Answering "much the same" is safe, easy, non-emotional and with most people is about all I say. Sometimes; however, I do go into more detail. Some people genuinely want to know and others really don't. That's OK. Sometimes I want to share and sometimes I don't. At times, details lead into tears and emotions that I would rather leave alone. Especially if I've just visited Mike, and he wasn't feeling well, or didn't look the best. So...how is Mike?

The Good News:  The last three times I've visited Mike he has been calmer and more relaxed. He did not come down the hall saying "no, no, no" either. Dr. Ebeling started a new medicine shortly after Christmas and so far it seems to be helping. I hope for the best, but am skeptical as we have been down this road before. However, maybe this is THE medicine or correct combo of medicines. Whatever the long-term outcome, I am thankful for Dr. Ebeling. He has not had experience with brain injury prior to Mike, but he is willing to try different approaches, read reports and proceed cautiously with medication adjustments. A neurologist friend of his gave Dr. Ebeling a 50 page report about some medicines that had proven successful for some TBI patients and he took the time to read this over his Christmas break. Previously, when Mike was acting up after being at the Treatment Mall, Dr. Ebeling made a plan to separate Mike from the rest of the residents until supper time. By limiting the amount of stimulation for a time, Mike's behavior improved and there were less behavioral issues. You have to remember that CSH is not really set up for brain injury patients, so Dr. Ebeling is also trying to train the staff in how to handle Mike as well. Please pray for continued wisdom for Dr. Ebeling and his staff in regards to Mike's treatment and care.

The Bad News:  Mike has an abscess on his back side. He said it was not hurting now and is healing. Last Saturday when I visited him, his throat was very sore. Spoke with a nurse or tech during the week and they said Mike was on an antibiotic and seemed to be feeling better. Mom, Randy, Karen and I visited with him last night and though he was calm, I didn't think he looked very good. To me his eyes looked like he wasn't feeling good. He is congested, but said his throat felt better. He hasn't been shaved in several days and there were signs of food spills on his clothes. Mike was always so fastidious, so it is hard to see him disheveled. He still doesn't have any glasses either, so I know that contributes to things just not being right with him. His glasses were lost before Christmas. He has seen the eye doctor, but things move slow with the government and so glasses may be another 2 - 3 weeks. Mike ate his snack, we read a bit of mail, prayed together, and played Uno. The visit was fine. I just want so much more for Mike and it's still out of reach.

Most places won't even consider taking Mike since there is a history of aggression and erratic behavior. I took a prayer walk today and wrestled with what our options are - there aren't many. Please pray that the Lord will open a door to a more homey, safe place. One that is close enough for me to be part of his care and be able to spend time with him in more than just an impersonal visiting room. Plus, one where others will be more comfortable visiting also. I'm going to start calling and looking again tomorrow. I was getting anxious and fretting this afternoon, but after spending time with the Lord, my spirit was calmed.

The past 2 weeks, this has been my go-to verse: Isaiah 30:15 "....in quietness and trust is your strength...." It was part of my daily reading a couple of weeks ago, then yesterday it was the verse of the day on a daily calendar that Mom has on a shelf above the kitchen sink. God's reminder to me to keep trusting Him. Another verse that came to my attention from the little daily calendar is Acts 3:19 (NKJV) "Repent therefore and be converted, that your sins may be blotted out, so that times of refreshing may come from the presence of the Lord." I like the New King James Version because it says if we have repented, our sins are blotted out and that we will be refreshed because of the Lord's presence. Other translations say that refreshing will come from the Lord. It may be subtle, but to me there is a difference. The later sounds like something the Lord hands to us, possibly from a distance, while the former says that the Lord's very presence with us will refresh us. I am so glad that our God is with us. Emmanuel - God with us. God's presence is with those who repent and come to Him. Don't you want to be refreshed today? Jesus is the only way and He loves you so much. Actually, the beginning of Isaiah 30:15 talks about repentance also. The quietness, trust and refreshing comes after repentance. When we stop going our way, turn and go with God, then there is peace. May you know that peace today.

Please remember Mike in your prayers and remember to write. He loves to receive mail and it gives him something to do when he writes back. Thank you. Here's his address again:

Mike Rice
Central State Hospital
Bldg. 94, Ward 4
P.O. Box 4030
Petersburg, VA 23803