The last 2 weeks, I sent out an SOS to several people and places. Finding the right person(s) to spend time with Mike is proving to be difficult. Unfortunately, the 2 local organizations did not work out, ones I called in Richmond do not service this area, and the one I'm currently working through from Colonial Heights called this afternoon and said they do not have a good fit to send tomorrow, but are going to run an ad to try to find someone. Hmmmm? I appreciate the effort and they have communicated very well with me, but I won't expect anyone soon. What I like about this company is that their employees are allowed to drive clients, so I was hoping for 2 days a week/5 hours a day where they would take Mike to Johnny's to work out. I'd take one day for myself and one day to help Mom.
|
Working out at Johnny's |
I also made a request at church asking men to let me know if they had a couple of hours that they could spend with Mike. While Mike is better, we still have rough periods and being responsible for someone else 24/7 is tiring. I need help and about lost my sanity one day this week. The curious thing is that Mike can act mostly normal at church on Sunday mornings, Wednesday night suppers, around other people, most of the time at Johnny's, and was a perfect gentleman, answering questions, calm, etc. with the nurse that came to evaluate him. Then seems to fall apart when it's just the two of us. I'm getting a complex. I'm always trying to figure out why he acts the way he does and these are some of the possibilities I've come up with so far.
1. He sees me as the caregiver and resents me asking him if he's done this or that or telling him what he needs to do, setting the schedule, etc. - nag, nag, nag
2. If his attention is not constantly engaged by an activity or person, he cannot maintain calm or focus so resorts to repeating.
3. He expects someone to be immediately available upon his every question, demand or request. If no one responds quickly or doesn't respond the way he wants, he becomes frustrated or anxious and reverts to the repeating which can escalate into poor behavior.
4. We're just together way too much and get on each other's nerves. (think about anyone you love, do you
really want to spend every moment of every day with them even if all is "normal"?)
Thankfully, since the weather has warmed up, we are able to get outside more and work in the yard. A real plus this week is that Tracey gave Mike a project of scraping and painting the poles for the horse jumps. (I don't know what to call them.) I asked Mike if he wanted me to help him or if he would prefer to work by himself and he wanted to work by himself. Woo Hoo!! This was wonderful! He scraped and I raked and we both enjoyed some time of independence on Friday and again on Saturday. Saturday morning, we joined folks at church for the clean up day. Mike raked with the men and I washed windows with the ladies. Another nice change of pace. Tonight, Hugh has taken Mike to church to hopefully play the role of Thomas in the Lord's supper play at church on Maundy Thursday. Please pray that he will be able to do this without any TBI episodes. He really wants to be involved in church activities and I'm so thankful they are giving him the chance. (They returned and all went well! Praise the Lord!!)
On Thursday, we went to Richmond, ate at the Crazy Greek restaurant, did a couple of errands and went to see the movie
God's Not Dead. Very good movie - go see it. Mike really gets into whatever he reads or watches. He shouted out a few times during the movie, but didn't get out of control, so we were able to stay. However, I don't think we'll go to many movies. We almost didn't make it through the previews - they were too intense and he was getting agitated and started rocking in his seat.
I had a wonderful, spiritually filling time at the women's retreat a couple of weeks ago. What an amazing, beautiful, spirit-filled group of ladies. We sang, cried, laughed, praised, shared, ate and met new sisters in the Lord. Gayle, Tracey, Coley and Hugh got along fine with Mike. Gayle was pulling double duty. Our Mom blacked out that week and fell in the kitchen, hitting her head when she fell. Mom was checked out well at the ER and sent home. Said everything was fine with the pace maker and it must have been a drop in blood pressure. Gayle came a day early and helped with Mom. Unfortunately, Mom is still experiencing dizzy times and feeling woozy. Medication has been changed and doctors have been visited, but nothing real conclusive. Please keep her in your prayers that this will go away and that she'll have lots more energy soon.
We are anxiously awaiting word of our granddaughter's birth, but as of last night, still nothing happening. Today is the due date. Caleb is flying in on Tuesday, driving up to visit here and then we are all going back down to Charlotte next weekend. Hopefully she'll have arrived by then!
SOS - I was curious as to what SOS stands for and Googled it. It doesn't stand for anything according to Mentalfloss. It was morse code: 3 dots, 3 dashes, 3 dots that became the international sign of extreme distress. On Mentalfloss, it says that "save our souls" and "save our ship" are backronyms. Something people came up with to fit the letters. Well, I like both of the bacronyms. In my distress this week, I felt like a sinking ship and do indeed need help. God reminded me of a couple of verses that I shared at the women's retreat. I'm so thankful that He has saved my soul and continues to save me from myself.
2 Corinthians 4:16-18 "
Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal." It is so easy to lose focus. I really am a self-centered person and that's when I get the most resentful and aggravated about our situation. The following quote from Beth Moore's Praying God's Word really struck me after I had lost patience with Mike and yelled at him. "I admit that I reaped absolutely no benefit from the things I'm now ashamed of." So true! When I lose my patience with him, it only makes the situation worse and I feel awful. It is not helpful or productive. There is no benefit.
I Peter 5:10 "And the God of all grace, who called you to his eternal glory in Christ, after you have suffered a little while, will himself restore you and make you strong, firm and steadfast."
This trial will
not go on forever, God promises and He is faithful to His promises. What really struck me this time when I read I Peter was that after a little while, He
himself will restore us! WOW!
Himself! Now that's a promise I look forward to with great hope! Yes, it doesn't seem like a little while, but in God's timing and in light of eternity, this trial is light, momentary and only lasting a little while.
Yet, I do need help. It is hard to ask for help, but please help keep us afloat if you live in the area and are able. Especially men or couples, if I'm not going to be around or you want to take him somewhere. Whoever is interested, can e-mail me mcjrrice@gmail.com. I'm going to work on typing up instructions and necessary information. If there are several people, we can even have an info session. I've learned by fire, you don't have to learn that way. Thank you.